Connections: Find Support, Expertise, and Community
Navigating VEXAS syndrome can feel overwhelming, but you are not alone. The VEXAS Global Foundation is here to help patients, families, and clinicians connect with trusted medical professionals, support networks, and each other.
You don’t have to face VEXAS alone—reach out today and join a growing, supportive community.
For Patients and Families
Connect with Medical Experts: We can help link you to clinicians and specialists experienced in VEXAS syndrome for guidance and second opinions.
Find Support Groups: Join our community and discover support groups where you can share experiences, learn coping strategies, and find encouragement from others who understand what you’re facing. Support groups fill the gap between medical care and emotional support, offering a safe space to share personal stories, advice, and resources.
Patient Advocacy & Resources: We collaborate with leading advocacy organizations to provide the latest information, research updates, and psychosocial support.
For Clinicians
Network with Peers: Connect with other healthcare professionals treating VEXAS, share insights, and stay updated on emerging best practices.
Access Resources: Get the latest clinical guidelines, research, and referral information to support your patients.
Ready to Get Connected?
Browse our directory of trusted medical centers, rare disease organizations, and online communities you can contact directly.
Prefer a more tailored introduction or need help finding the right resource? Fill out our Get Involved form and our team will connect you.